Welcome,
I wanted to start off by introducing myself. Give you a little insight into what I've been dealing with for the past few years. I started this blog to help others who are going through a total hysterectomy at a young age. I am 30 years old now and started this journey when I was only 26. Back around 2007 I started getting really sick. I was in extreme abdominal pain constantly. I went to the doctors and was told that I had large fibroids and multiple cysts on my ovaries. We decided to play the watch and wait game. Let's just say that looking back on this I wish that I had done more sooner. Maybe things wouldn't have gotten so bad. My condition was not improving so I went to see my Primary Care doctor again. This time I saw his Nurse Practitioner who took a special interest in my case. She ran a lot of blood work on me and determined that I needed a blood transfusion right away due to very heavy periods. Let's just say that I was very nervous. This was not what I was expecting to have happen when I went in for a visit. I was hospitalized that day overnight with a OBGYN consult. I had my first of many blood transfusions that very evening. I was visiting my mom so my husband was not there to help me through this scary time. After speaking with my obgyn they decided to do an ultrasound to get a better feel for what was going on. After the ultrasound they felt that it would be best to do a D&C procedure. So within a week I went in for my first of 5 surgeries.
Let's fast forward a little. I tried multiple doctors, surgeries, hospital stays for antibiotics, PICC Line for more antibiotics. You name it we tried it. All to keep from having to do a total hysterectomy. It was always in the back of my mind as a last resort because I had discussed the possibility of needing one with my doctors. I was eventually diagnosed with Severe Endometriosis, Fibroids, Adnomyomas, PID(Due to constant infection from the Endometriosis), and PCOD(Poly Cystic Ovarian Disease). After over two years of fighting what felt like a never ending battle my doctor and I decided that a partial hysterectomy needed to be done. He thought that my tubes were causing the complications I was experiencing. So on the day before Halloween of 2009 I went in for my first major surgery. The doctor removed my tubes, cysts from my ovaries and tried to remove as many adhesion's as possible. I had a full abdominal incision and was hospitalized for 4 days. Once I completely healed I noticed a big difference in my pain level. I felt like things were finally going to be okay. Within months everything changed. The pain came roaring back. It was worse than ever. My bleeding would go on for weeks at a time. It truly was taking full control over my life. During one of my appointments with my GYN Oncologists we discussed our fertility options. Since I was only 28 years old at the time we wanted to try to have a baby before we took any drastic measures to fight this horrible disease. After speaking with an infertility specialist where we were told it would not be possible for me to ever carry a child then deep down I knew what I needed to do. On my next check up with my oncologists I went by myself. During that appointment we both realized exactly how serious and life threatening my condition was again. It was decided at that appointment that I needed to have a Total Radical Abdominal Hysterectomy. That is where they completely remove everything. I was so nervous and heartbroken. I remember walking into the other room with my hands trembling trying to tell the nurse I needed to set up an appointment for my surgery. Just having to say the word hysterectomy cut deep into my soul. I had always wanted to experience child birth and the joy of carrying a baby to term. I knew at that very moment any dreams I still had of ever being able to do that were over. The surgery was scheduled for about two weeks later.
On June 4, 2010 I had a total hysterectomy at 28 years old. I remember my pre-op appointment that my mom took me too. I was so nervous. It was so heartbreaking to listen to the nurse describe everything that was going to take place before, during and after my surgery. I kept wishing there was another way but I knew there wasn't. I remember asking with tears in my eyes and my voice trembling was I the youngest person to ever have this done at their hospital. The nurse looked at me with tears in her eyes and said yes! At that moment I realized she could feel my pain. She understood how scared, angry, and heartbroken I was all at the same time. The fact that I'm a nurse didn't seem to make this any easier. In a way it made it harder. I hated the fact that I could help heal other people but not myself. I felt betrayed by my own body. I kept repeating to myself how could this be.... how could I not have any control over my body? I kept wondering what was the reason behind this. Everybody would say god doesn't give you more than you can handle.... well to me that wasn't true. This ordeal was so much more than I could handle. My heart was breaking and nobody around me knew exactly what to say. At 28 years old I was having to give up on a dream that I had all my life. I understood why it needed to be done but I hated it.
By writing this blog I hope to continue on the emotional healing process. I also want to talk about a subject that so many women have to go through. Especially young women! I want this to be a place where you can get answers to your questions. Where by reading this blog you have a better idea of what life is like after a hysterectomy. For the ones who are going through the same pain that I am, just know that you are not alone! Together we can get through this!! Thank you for taking the time to read my blog! I hope that my story can help bring you comfort. Until next time.... Have an amazing day! *hugs*
Oh Alicia, I am in tears reading this because I was on this same path...I had been told from the time I was in high school that I would never carry a baby because of all these problems but I still had the dream. After the first two surgeries to remove ovarian cysts the doctor determined I also had adenomyosis (sp). After this news my chances were even lower of having children of my own and I was told IF I were to ever become pregnant I would not be able to go into labor our deliver vaginally because of an 80% chance of ovarian rupture that would kill me and possibly baby. So with this news I too had to lose my dream...I was speaking with doctors about a full hysterectomy because not even a partial would do it...I was so scared...that's when Jupiter and I got back together, and although he knew there was very little chance of kids of his own he was there and supportive of me and the process and journey I was just beginning...then the unthinkable happened after years of trying I actually became pregnant...you know the rest of the story, but it isn't a totally happy ending...I deal with a ton of pain everyday, and it seems only Jupiter really understand how hard it is on me everyday, not to mention when I was pregnant. Now I still need the hysterectomy, and he is totally ok and trying to convince to do it now...I keep going back and fourth between trying to let lightning strike again or to be done with all this pain.
ReplyDeleteAnyway, I just wanted to say I understand a lot of what you have gone through and I love you!!! I know some day you will be a wonderful mother!!! You don't get the title "mother" by carrying a child, but by the live you have and give to a child, and I know you have tons to give!!!
Kay, I want to first off thank you from the bottom of my heart for all of your love and support. I decided to write this blog to help others who are going through a hard time like mine. I want yawl to understand that you're not alone. The pain that comes with this is normal. It's scary to even think about having to make a choice like having a hysterectomy at such a young age. I'm here for you every step of the way. If you have any questions or need any support don't hesitate to ask. Being in constant pain is a horrible way to live. It robs you of being able to fully enjoy your life. On the other hand it's so very hard to give up a huge part of yourself. I understand what you are feeling. I've been there questioning whether or not it was the right choice. Should I go through with it or not. Even though this has been a very difficult road I highly suggest it. I hate that I was even put in this position to have to make the choice of carrying a baby to term or my life. I would not wish this on my worst enemy. Just know that you have an amazing support system. One who will be here for you every step of the way. When you are ready and only then will you decide what to do. My suggestion ask a lot of questions. Talk with as many women as you can who are going through or have been through what you are dealing with now. Hang in there sweetie. I promise it does get better! No matter what I will always be there for you! I know personally that I could not have gotten through this as well without you!
DeleteI love ya! Thank you so much for always being there! I hope this blog is able to help you in your journey! If you need anything please ask! *hugs*
Oops... That was supposed to say love to give.
ReplyDeleteAlicia you are an amazing woman...and although I have read your words and heard your story before, I still come to tears like the first time. You are strong and beautiful and like I always said, your baby is out there he/she is just coming to you in a different package! I love you and thank you for sharing!!
ReplyDeleteCaty,
DeleteI can't even begin to thank you for being there for me through this! I appreciate it more than I can ever explain. Thank you for giving me the courage to keep fighting and remember that there is a reason for all of this pain. I don't know what I would do without you! *hugs*
Thank you for sharing this. You are such a strong, amazing woman. You will be someones mommy someday. They will just come to you in a different way. I am so sorry you have had to go through all of this. I am so happy to know you and be able to call you my friend. Hugs to you!
ReplyDeleteThank you so much Erika!!! I am truly looking forward to the day when I will be able to be a mommy!!! I could not have gotten through this without you!! Your love and support means everything to me! I am thankful to call you a friend as well!!! *hugs*
DeleteAlicia, I know this is old but I wanted to say I completely understand how you feel. I had a hysterectomy at the age of 24! I just had my hysterectomy almost a week and half ago, recovery has been okay. I just thought I would be doing so much better by now. I am feeling a lot better than before surgery, kinda wish I would have done it sooner! Anyway I am going to finish reading your blog and see how your doing now!!! Hugs!!!
ReplyDeletePs, thanks for writing this! Makes me feel I'm not alone!!! Hugs!! Nicole
Hi Nicole,
DeleteI'm so sorry that I'm just now seeing this post. I'm so glad that this blog was able to bring you comfort. I started it because I didn't want young women to feel alone during this very stressful experience. When you have a hysterectomy at a young age it kind of separates you from your friends and puts you in a different phase of life that you never planned on hitting so soon. I am now facing this battle again due to complications from my surgery. I did have over 2 amazing years where I felt so much better! I still feel better than I did before my surgery. Even though it was the hardest thing I've ever had to do it's the best thing I could have done for myself. I honestly don't know if I would still be here if I hadn't.
How are you feeling now? How long did it take you to recover. I always tell my patients that it takes a good 6-8 weeks to finally start to feel better. A hysterectomy is a very major surgery and we sometimes can forget that we need to continue to take it easy long after our sutures are gone. The better we rest and take care of ourselves during recovery the easier the rest of our life will be. :)
Wishing you all the best. Have a wonderful day.
I started having issues at 16. I lost my first full ovary due to cysts when I turned 20. I am blessed to say that at almost 22 I had a little girl. At 24 I lost half of my remaining ovary to another cyst. Both cysts were thought to be the size of a golf ball, but the forst was the size of a grapefruit and the second a small watermelon. I battle with menopause. I generally spot once a year, then have the hotflashes and "everything makes me want to kill" mood swings. I've been researching on menopause, and mostly find stories of older women. It hurts my heart to think of your situation. God bless you.
ReplyDeleteThank you Kelli! That means so much. It sounds like you have been through a very rough time as well. This process is never easy and everybody has a different journey but that doesn't make what you are going through any less traumatic. I'm so happy that you were able to have a child! That's so wonderful! What a blessing!!! Menopause is so hard. When you go through it at a young age there aren't a lot of people that you can talk to about it. Most people just wouldn't understand. That's why I started this blog so women who were my age and younger wouldn't feel so alone. I hope that it is able to bring comfort to anyone going through menopause. Thank you for taking a moment to read this and tell your story. <3
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